Epilepsy been a little stirred up, sort of an unsettling feeling. It happens sometimes. A flu can do it. H1N1 had me off for weeks. covid a couple days. Had no idea what’s been setting this off. Then just now I see a long article in the San Francisco Chronicle about the health effects of solar flares. The nervous system is affected, and those of us with neurological conditions are especially sensitive to it. Epilepsy, which is basically just a nervous system prone to shorting out, must be especially sensitive, the very air around us being swept by electro-magnetic energy and passing through my flesh and bone to set my neurons on edge. Groovy. Suddenly I’m science fiction.
So I took an extra pill.
Category Archives: Epilepsy
St. Valentine protect us.
Smoosh
There were perks to being a jazz columnist. Free records, no cover charges, and awesome seats at the Hollywood Bowl were nice. And having lovely women in tight sweaters say Hi! and smooshing their boobs against me in a bear hug as they planted big smooches on my cheek and/or lips was always sort of disconcertingly pleasant. I say disconcerting because I could never tell if I knew the ladies or not. You see I’m epileptic, and epilepsy comes and goes in severity, sometimes it’s mellow and other times it roars in like a violent summer storm. Thus my epilepsy flared up suddenly in 2006 and had severely impaired my facial recognition skills, indeed had done so literally overnight. In fact, it had done so so suddenly that I couldn’t recognize many people at first, even close friends and siblings, people I’d known for years and saw every day could look like complete strangers and those I did recognize immediately looked different. People who were acquaintances I couldn’t recognize at all. So you could come up and give me a big smile and squeezy hug and a big wet smooch and unless I knew you really well it was likely I wouldn’t have a clue who you were. Such things happened in the oddest places. I remember once in the lobby of the ABC building where I worked a leggy knockout in a miniskirt and skintight top yelled Hi Brick! and gave me a full body boob smooshing hug with the big smooch on the cheek in front of the big lunchtime crowd. I’d learned to not look surprised by then and we chatted for a minute. She was on her way to some meeting or broadcast or something, she said, and was late already, and as her frantic manager or agent or whoever finally got her into the elevator and the doors slid shut behind her and those long, lovely legs, I wondered who she was. I really had no idea, not the slightest. I mean, I’m sure I did know who she was, we’d obviously met, met long enough to rate a smoosh and a smooch, I just couldn’t recognize her. The people all around me in that ABC lobby who’d seen that smoosh had no idea who I was either. Just somebody, obviously. Nobodies never got full body boob smooshing hugs with big smooches, not from leggy miniskirted dolls to die for. Only the somebodies got those. So all the nobodies in the lobby pretended not to wonder who I was, as one does, and I pretended such smooshes and smooches were a normal thing, just part of whatever job it was I must be doing. That’s show biz. Once packed safely into the elevator for the ride up to my floor I figured the incident was already forgotten. As we ascended an attractive woman next to me whom I didn’t know looked at me and grinned, pulling a Kleenex from her purse. Now Brick, she said, that won’t do at all, and she reached up to wipe the cherry red lipstick from my cheek.
Never been Dullsville
When the osteoarthritis kicks in hard for a few days and you hurt all over you can feel your life pass in every twinge. You remember all the things that fucked up this part of you and what wrecked another, sometimes you even remember the time you cracked that knuckle so hard on the edge of your ride cymbal or falling down the stairs or what fractured your spine one of the times you fractured your spine. You can remember all the the sixty pound boxes you lifted and tossed up onto your shoulders, thousands of them, all the furniture you helped girls move, all the movement that finished off your knee. You can feel where your flat foot stomped on a bass drum pedal every few seconds, like smacking a board with a hammer over and over and over. You can remember all the stairs you ran down two or three at a time hundreds of times. Your body becomes a big memory machine. Good memories. You even relish the hurt, because it brings back younger, stronger, fitter times, and how goddam much you dug doing all the things you’re paying for now, as you knew you would, the big old beat up geezers would warn you, don’t do what I did, as if you ever would do anything else, hell, you wouldn’t have changed a single thing. You do what you gotta do. You’re a big giant guy, you’re young, you’re strong as an ox and not much brighter sometimes, and you don’t worry about nothing. You’ll wind up a big giant crippled old motherfucker, but you lived the life.
Ouch.
I did the same thing with the brain, though, pushing it far beyond what the wiring could take, setting off seizure after seizure because, hell, that’s what writers do. That wasn’t a great idea, but there were no old epileptic writing geezers to say don’t do what I did, the ones that had done what they did were in institutions or hiding in bedrooms or medicated all to holy fuck and you never see those guys anyway. So I just pushed the limits. Paid for it. Still paying for it. Got some mighty pretty writing done, though, there’s that. And it’s never been dullsville. Weird maybe, but never dull. Ha.
That’s it.
Then the next day….
A lot of this thing was me having a ball writing rhythmically berserk sentences that any editor worth their Strunk and White would feel an overwhelming urge to correct, the high point of which was “You even relish the hurt, because it brings back younger, stronger, fitter times, and how goddam much you dug doing all the things you’re paying for now, as you knew you would, the big old beat up geezers would warn you, don’t do what I did, as if you ever would do anything else, hell, you wouldn’t have changed a single thing” which has all the grace and beauty of a drunk falling down the stairs. I was just letting that fucker roll, it kept tumbling, word after word, breaking all the rules and finally ending on a thing, one of my favorite words, though I couldn’t tell you why. That’s the fun way to write, just let the words roll out on their own, they’ll get somewhere eventually, and when they do just put a period down and hot damn, you got yourself a sentence. Also, I’d like to take credit for medicated all to holy fuck, but that’s actually Shakespeare.
Now they tell me
So apparently epilepsy and Benadryl don’t mix. Especially combined with lots of strong coffee, little sleep and a nasty sinus infection. Funny what you learn way past the age of being old enough to know better. Better now. A little more memory damage, more leery of writing than ever. Next time I pick an easier disability. Bone spurs, maybe.
My atavistic trip back into the real world for a week.
Lost my iPhone—it apparently slipped between the seats in an Uber and is forever lost in the bowels of a Toyota—and took nearly a week to get a new one. It was our sole connection to the internet, as I’d put away the desktop when I realized that my epileptic hypergraphia was out of control and my brain a sizzling, sputtering epileptic mess—basically, I was losing it—and figured that an iPhone would help contain the problem. It has, for the most part, with only occasional lurches into hypergraphia and other charming intra-ictal personality traits. Anyway, I was frantic for a few hours after losing the phone, it’s like our entire lives were on it, then it dawned on me that I didn’t actually need the internet right away for anything. I began to thoroughly enjoy not having a digital existence. Suddenly all these projects around here got completed. More reading got done. Instead of Twitter and Facebook and whatever it is that men do on the internet I was watching old movies. Didn’t write one fucking sentence, the spigot had been turned off. It was quite terrific.
Then late yesterday afternoon a lovely little thing in a postal uniform knocked on the door. She looked just like the messengers who are always delivering telegrams at just the wrong times in old movies, except you don’t tip them. Your phone, sir. I thanked her, signed, sighed and opened the box. Spent the next hour trying to maneuver through the tortuous maze Apple forces those among us who do not have any other Apple devices handy to wend our way through to turn the fucking thing on (now that was a sentence, I must be out of shape.) Then spent the next couple hours downloading all the apps that control our lives—I had made a list ahead of time that had them in order and checked them off one by one, like a good secretary. Then I looked at Facebook but couldn’t get into it. Looked at Twitter but it was all massacres and death. Email was just email. Even my blogs failed to spark. Nothing on the little screen sparked, none of my usual digital haunts. It all seemed so, uh, lifeless. Two dimensional. Too digital. So I put it down.
But here I am again.
Sigh….
Sent from my fucking iPhone.
When Irish Eyes Are Seething
My new and excruciatingly dull mellow epileptic lifestyle is so teutonically ordered that the creative Irish half is getting surly and bored and would really love some whiskey. Es tut mir leid Nelligan, that’s not in the budget this month. Nelligan loathes Herr Wahl and his perfect budget and organization and bill paying. Hates all the regularity and planning. Hates it with a fine Irish hate. But he’s been cut off. Every time he gets hold of the bank card bills bounce, things go awry, mere anarchy is loosed upon the household. It makes for good stories though. Or did, before the Kraut forced his way back in. Dass ist genug, Wahl commands, you’ll get us all spazzisch im dem Kopf mit your idiotische ramblings and he grabs the iPhone away before Nelligan can finish the
Amnesia
I’m reminded of the time many decades ago that I was smoking a joint with a pretty hippie chick at a reggae festival in Santa Barbara. We slipped back behind the stage, just the two of us, and hid in the bushes getting high. Real high. She had a fat baggie full of skunk weed and rolled big bomber joints with long psychedelically painted nails. We were so stoned and I wondered aloud how she gotten that stash past the really obnoxious security. They’d been searching everything and everybody at the gate. She laughed. I hid it in a well concealed place she said. Oh, like in your bra? I’m not wearing a bra she said and she gave a little wiggle. She wasn’t. We traded a joint back and forth. So how did you get it in then? She smiled. Have another hit, she said and pulled a fresh joint from the hem of her hippie dress. Ah ha.
The only reason I remember that story is that I found a scrap of writing once from 1979 describing it. I have pretty massive memory loss from those days–way too many seizures–and have no direct memory of any of it. No idea who the girl was. I don’t know if we knew each other already or not. Or if we did anything more than lie about in the bushes getting stoned and giggling.
It haunts me a bit, this fragment of an afternoon back in 1979. Like a solitary page of an ancient papyrus, it’s all that remains of a story long vaporized into dust. Amnesia.
There goes that great American novel…
OK, I’m not writing a novel. I tried writing a novel once when a Good Samaritan stepped in and told me it was the worst thing he’d ever read. Which it was. So I write non-fiction. Or try, when the epilepsy doesn’t object.
For a couple weeks now I’ve been pushing myself with the writing, seeing what I can do without setting off my epilepsy. There’s been no fuzziness, no numbness in the limbs, very little stuttering and speech problems, no confusion, none of all the symptoms that make me everyone’s quirky special friend. I’m almost as dull as regular people.
But yesterday I stepped outside and the world was gorgeously two dimensional. The colors were vivid, even at dusk, the perspective flat. It looked like a Van Gogh painting, tho’ I suppose only an epileptic can see the epilepsy in a Van Gogh painting. Tonight it was even more vivid. I really can’t explain how beautiful it is, tho’ LSD has a similar effect. But it’s not a good sign. That Van Gogh effect is an epileptic aura, a prelude of the fun to come if I don’t cool it with all the renewed writing. I hadn’t had an aura since I stopped writing last year. Start up again and now I’ve got Vincent Van Gogh eyes.
Experiment over, I will follow my pal Kirk Silsbee’s admonition and take it slow, take it slow. I think in be bop, but I’ll have to write like a cool Stan Getz, if that makes any sense.
So this’ll be the last essay for a while. Now just jokes and insults and the occasional brief whining.
Anyway, a poet once said:
They say
this was where Ray-
mundo Chandler drunk
and wrote and thunk
he oughta write some more.
What for?
.
Status report
(Facebook post of August, 2018)
Been slowly getting the brain used to writing more, to see if I can be a writer again without spazzing and all that. It’s the only thing I know how to do, after all. So I push it a little at a time. I used to be the macho epileptic guy, the machoest even, just pushing myself to the max because that is what gnarly epileptic writers do. Seizure? Fuck it. Let’s drink cup after cup of coffee and write all nite and see what happens. And it happened….those long long paragraphs full of crazy rhythms and swirling roller coaster narratives. The grooviest shit. But they took their toll. This new excruciatingly dull mellow epileptic lifestyle is not big on gnarliness. It’s more goat yoga and being nice. Neither of which I will actually do, but whatever. Anyway, that explains the occasional verbosity on Facebook. It’s not that I like any of you. Well, OK, maybe a little. Maybe a lot even, some of you. Most of you. All of you. Whatever. But I’m not gonna go all Facebook soft and cuddly. Leave a punk rock jazz critic a little pride, sheesh. To quote Lee Ving—well, maybe not. Nor Miles. This is a family website. Fuck.
Good nite.
Power Outage
Power’s been off and on, mostly off, all day here in our stretch of Silver Lake. Gotta love the DWP, delivering juice with all the intermittent excitement of a fourth world capital besieged or maybe Caracas on a bad day for socialism. I made dinner in the dark. Spilled milk. Didn’t cry. Ate in a candle lit room accompanied by our battery operated phonograph. I had listened to Chicago jazz all afternoon–found an extraordinary LP side of Pee Wee Russell, Vic Dickinson, Wild Bill Davison and Bud Freeman from the 1950’s I don’t think I’d ever listened to, with a riotous Muskrat Ramble at be bop tempo, just nuts. At one point I realized I’d listened to three LP’s worth of tracks none of which had been cut less than ninety years ago. An afternoon like that. Then the power came back on halfway through some late forties Ellington. Cat Anderson hit a high note and switched on all the lights. So I put the turntable away and reset all the clocks and started laundry and got online when Elmer Fudd at the DWP tripped over the extension cord again and the whole neighborhood was draped in dusk. As it lingered, ever darker, I lit candles and pulled out the record player again and switched to the two Bowie LPs I have left (I used to have a dozen, but they’re gone) and cringed at Kooks, as always. Then power came back on finally and I put the record player away and blew out the candles and was about to turn on the computer when Jerry Lewis at the DWP beat me to it by falling onto the main off switch with his foot stuck in a waste basket. Darkness again. The whole neighborhood enveloped in darkness. I sat in the living room in the dark and listened to distant light. A siren cut the stillness and coyotes howled and it was like the end of civilization, like Paris in the depth of the 14th century, beset by plague and war and brigands and famine, when wolves haunted the night time streets and snatched the unwary. Like that. Well, not quite like that. It was dark, though. So I lit more candles, pulled out the record player, and listened to the first Buzzcocks LP which I bought forty years ago next year, and it sounded gloriously low fi like it did on cheap punk rock record players in 1978, and I sat in the dark and remembered what a great album it had been to fuck to, but never mind. The second album sounded even better, incredibly creative, and just as Late For the Train reached its swirling, soaring, pounding finish the power came back on, lights on everywhere. Damn, someone at the DWP has groovy timing.
And here comes the epilepsy, a buzzing numbing fog. I forgot.

Corner of Effie and Lucile, a hill or two over, in another blackout, but you get the idea. That’s Sunset Blvd down there, looking awash in klieg lights. Photo by Armand Emamdjomeh, Los Angeles Times, from 2015.